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Neuromuscular Disease Foundation | GNE Myopathy | HIBM

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Neuromuscular Disease Foundation is a resource for information about GNE Myopathy, formerly known as HIBM, a rare neuromuscular disease.

Screenshot of curegnem.org
50
pages crawled
50
indexable pages
0
errors
217
warnings
206
notices
21
orphan pages
0
broken links
Category breakdown
CategoryScoreErrorsWarningsNotices
Links 29 0 119 0
Duplicate 74 0 43 0
Headings 81 0 32 1
Meta Description 95 0 9 4
Agent Readiness 98 0 4 9
Images 98 0 4 50
Structured Data 98 0 4 0
Crawlability 99 0 1 0
Titles 99 0 1 0
Cache 100 0 0 49
Security 100 0 0 50
Social 100 0 0 41
URL 100 0 0 2
Findings

Warnings (10 rules)

warning Control has no accessible name

Rule agent.control_no_name · Agent Readiness · 4 occurrence(s)

warning Near-duplicate page content

Rule duplicate.near · Duplicate · 43 occurrence(s)

  • https://curegnem.org/2015/04/breaking-glass-caras-story/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/2017/12/neuromuscular-disease-foundation-ndf-launches-whole-genome-sequencing-research-for-rare-muscle-disease/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/2018/10/rare-disease-foundation-takes-on-2-5-million-challenge-grant-to-fund-gene-therapy/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2018/10/rare-disease-foundation-takes-on-2-5-million-challenge-grant-to-fund-gene-therapy/
  • https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/, https://curegnem.org/2018/10/rare-disease-foundation-takes-on-2-5-million-challenge-grant-to-fund-gene-therapy/
  • https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/ — near-duplicate of 42 page(s): https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/, https://curegnem.org/2018/10/rare-disease-foundation-takes-on-2-5-million-challenge-grant-to-fund-gene-therapy/
  • https://curegnem.org/2024/02/29-february-is-rare-disease-day/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/2025/10/gene-therapy-effort-for-gne-myopathy-hibm/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/about/groups/ambassadors/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/about/groups/certified-patient-advocates/abdullah-al-shamrani/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/about/org-info/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/accessibility/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/contact/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/get-involved/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/get-involved/volunteer/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/news/newsletter-archive/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/programs/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/programs/common-questions/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/programs/common-questions/test-page/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/research/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/services/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/staff/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/submit-organizer-form/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/terms-conditions/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
  • https://curegnem.org/venue-dashboard/ — near-duplicate of 42 page(s): https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/, https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/, https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/

warning Images missing alt text

Rule images.missing_alt · Images · 4 occurrence(s)

warning Orphan page (no internal inlinks)

Rule links.orphan · Links · 21 occurrence(s)

warning Internal link points to a redirect

Rule links.redirect_target · Links · 98 occurrence(s)

warning Redirect chain (multiple hops)

Rule redirect.chain · Crawlability · 1 occurrence(s)

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Rule title.too_long · Titles · 1 occurrence(s)

Notices (10 rules)

notice No llms.txt for AI agents

Rule agent.llms_txt_missing · Agent Readiness · 1 occurrence(s)

  • https://curegnem.org/ — no llms.txt found at the site root — add one so AI agents get a curated site summary

notice Page served uncached (no-store/private or CDN bypass)

Rule cache.not_cacheable · Cache · 49 occurrence(s)

notice Multiple <h1> elements

Rule h1.multiple · Headings · 1 occurrence(s)

notice Images without width/height (layout shift / CLS)

Rule images.missing_dimensions · Images · 50 occurrence(s)

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Rule og.missing · Social · 41 occurrence(s)

notice Missing recommended security headers

Rule security.missing_headers · Security · 50 occurrence(s)

Pages (showing 50 of 50)
URLStatusIndexableWordsIn-links
https://curegnem.org/
Neuromuscular Disease Foundation | GNE Myopathy | HIBM
200 yes 2320 50
https://curegnem.org/accessibility/
NDF | Accessibility | GNE Myopathy (GNEM)
200 yes 1596 50
https://curegnem.org/privacy-policy/
NDF | Privacy Policy | GNE Myopathy (GNEM)
200 yes 2972 50
https://curegnem.org/terms-conditions/
NDF | Terms & Conditions | GNE Myopathy (GNEM)
200 yes 1636 50
https://curegnem.org/2021-annual-report/
NDF | 2021 Annual Report | GNE Myopathy Research
200 yes 1635 49
https://curegnem.org/about/
NDF | About Page - Mission | GNE Myopathy (GNEM) / HIBM
200 yes 1944 49
https://curegnem.org/about/groups/ambassadors/
NDF | NDF Ambassadors | GNE Myopathy Research
200 yes 1666 49
https://curegnem.org/about/org-info/
NDF | GNE Myopathy Research | Organizational Structure
200 yes 1783 49
https://curegnem.org/contact/
NDF | GNE Myopathy (GNEM) / HIBM Research | Contact Us
200 yes 1606 49
https://curegnem.org/get-involved/
Neuromuscular Disease Foundation | Donate | GNE Myopathy
200 yes 2171 98
https://curegnem.org/get-involved/volunteer/
NDF | GNE Myopathy (GNEM) | Volunteer | Ways To Get Involved
200 yes 2338 49
https://curegnem.org/monthlygiving/
NDF | Monthly Giving Program | GNE Myopathy patients - HIBM
200 yes 1776 49
https://curegnem.org/programs/
NDF | 4 Core Programs to Fight Against GNE Myopathy (GNEM) / HIBM
200 yes 1745 49
https://curegnem.org/research/
Neuromuscular Disease Foundation | GNE Myopathy | GNEM Research
200 yes 1769 49
https://curegnem.org/research/related-publications/
NDF | GNE Myopathy (GNEM) / HIBM Related Publications
200 yes 2925 49
https://curegnem.org/upcoming-events/
NDF | GNE Myopathy (GNEM) / HIBM | Upcoming Events
200 yes 1564 49
https://curegnem.org/upcoming-events/corporate-partnership/
NDF | Corporate Partnership | GNE Myopathy Research
200 yes 2093 49
https://curegnem.org/2025/10/gene-therapy-effort-for-gne-myopathy-hibm/
Gene Therapy Effort for GNE Myopathy/HIBM - | GNE Myopathy Research
200 yes 2709 12
https://curegnem.org/programs/common-questions/
NDF| Common Questions | GNE Myopathy Research
200 yes 1697 4
https://curegnem.org/2021/12/the-philosophy-of-giving/
NDF | David Haverim on Generosity and NDF's Future | GNEM
200 yes 2912 1
https://curegnem.org/2022/01/rushabh-desai-talks-about-the-struggles-of-living-with-rare-muscular-disease-gnem/
NDF| Living with Rare Muscular Disease GNEM | GNE Myopathy Research
200 yes 3378 1
https://curegnem.org/executive-summary-of-ndfs-research-efforts/
Executive Summary of NDF's Research Efforts - GNE Myopathy Research
200 yes 1999 1
https://curegnem.org/programs/learning-library/patient-stories/kelly/
Neuromuscular Disease Foundation | Kelly's Story | GNEM Research
200 yes 2038 1
https://curegnem.org/2024/02/29-february-is-rare-disease-day/
29 February is Rare Disease Day | Neuromuscular Disease
200 yes 1960 11
https://curegnem.org/news/newsletter-archive/
NDF | Newsletter & Reports Archive | GNE Myopathy Research
200 yes 1712 11
https://curegnem.org/2017/12/neuromuscular-disease-foundation-ndf-launches-whole-genome-sequencing-research-for-rare-muscle-disease/
NDF | whole genome sequencing | GNE Myopathy Research
200 yes 2065 2
https://curegnem.org/services/
Services - GNE Myopathy Research
200 yes 1639 1
https://curegnem.org/2015/04/breaking-glass-caras-story/
NDF | "Breaking Glass" - Cara's Story | GNE Myopathy Research
200 yes 1664 1
https://curegnem.org/2018/10/rare-disease-foundation-takes-on-2-5-million-challenge-grant-to-fund-gene-therapy/
NDF | 2.5 Million matching grant for GNE Myopathy Research
200 yes 2113 1
https://curegnem.org/2019/12/nature-com-ways-to-make-meetings-accessible-featuring-ndfs-dr-monkol-lek/
NDF | Ways to improve conference accessibility | GNEM
200 yes 1691 0
https://curegnem.org/2020/08/leading-nih-expert-on-gne-myopathy-joins-the-neuromuscular-disease-foundation-ndf/
NDF | Dr. Nuria Carillo joins our team | GNE Myopathy Research
200 yes 2124 0
https://curegnem.org/2023/01/neuromuscular-disease-foundation-dr-kelly-crowe-presented-research-grant-from-uplifting-athletes/
Neuromuscular Disease Foundation’s Dr. Kelly Crowe Presented with $20,000 Research Grant from Uplifting Athletes
200 yes 2430 0
https://curegnem.org/about/groups/certified-patient-advocates/abdullah-al-shamrani/
Abdullah Al Shamrani - GNE Myopathy Research
200 yes 1565 0
https://curegnem.org/carolyn-yashari-becher-esq-founders-circle-award/
NDF | Carolyn Yashari-Becher, Esq. - Founder's Circle Award
200 yes 1720 0
https://curegnem.org/gila-michael-2/
A message from NDF founder Gila Michael | Cure GNE Myopathy
200 yes 2131 0
https://curegnem.org/gila-michael-global-impact-award/
NDF | Gila Michael - Global Impact Award - | GNEM Research
200 yes 1686 0
https://curegnem.org/jessicas-story/
Jessica's Story - GNE Myopathy Research
200 yes 1780 0
https://curegnem.org/lale-welsh-visionary-award/
NDF | Lalé Welsh – Visionary Award | GNE Myopathy Research
200 yes 1734 0
https://curegnem.org/links/
NDF| Links | GNE Myopathy Research
200 yes 1217 0
https://curegnem.org/mona-patel-advocacy-award/
NDF | Mona Patel - Advocacy Award | GNE Myopathy Research
200 yes 1753 0
https://curegnem.org/organizer-dashboard/
NDF | Organizer Dashboard | GNE Myopathy Research
200 yes 1534 0
https://curegnem.org/programs/common-questions/test-page/
Test Page - GNE Myopathy Research
200 yes 1538 0
https://curegnem.org/staff/
Staff - GNE Myopathy Research
200 yes 1708 0
https://curegnem.org/stella-mitrani-rosenbaum-phd-scientific-achievement-award/
NDF | Stella Mitrani-Rosenbaum, PhD | GNE Myopathy Research
200 yes 1774 0
https://curegnem.org/stephanies-email/
Stephanie's email - GNE Myopathy Research
200 yes 1535 0
https://curegnem.org/submit-organizer-form/
NDF | Submit Organizer Form | GNE Myopathy Research
200 yes 1536 0
https://curegnem.org/submit-venue-form/
NDF | Submit Venue Form | GNE Myopathy Research
200 yes 1536 0
https://curegnem.org/tickets-checkout/
Tickets Checkout - GNE Myopathy Research
200 yes 1535 0
https://curegnem.org/tickets-order/
Order Completed - GNE Myopathy Research
200 yes 1535 0
https://curegnem.org/venue-dashboard/
NDF | Venue Dashboard | GNE Myopathy Research
200 yes 1534 0

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